Batten Disease - Patient Resource Page
NOTE: The key to health success is working with your team of medical professionals. This page and Bubl Health act as supplements to care from a qualified and licensed physician.
Curated by Sanya Dudeja
Start here - General batten disease Information
cleveland clinic
nih
webmd
Boston children’s hopsital
brainfoundation.org
Understanding Treatment Options
choc
fda news
Boston children’s hospital
Cleveland clinic
asgct
nature.com
Programs and Resources
batten disease support & research association
nih
batten disease news
choc
amicus therapeutics
beyondbatten
brain and life magazine
Questions to ask your doctor
What is Batten's disease life expectancy?
How is battens disease treated?
Is there a cure for Battens?
When is Batten disease diagnosed?
Is Batten disease always fatal?
Can Batten disease be prevented?
Is Batten disease neurological disorder?
What gene causes Batten disease?
How does Batten disease affect other organelles?
What research is being done?
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