Cystic Fibrosis (CF) - Patient Resource Page

NOTE: The key to health success is working with your team of medical professionals. This page and Bubl Health act as supplements to care from a qualified and licensed physician.

Curated by Sindhu Narayan

Start here - General CF Information

Mayo Clinic

Cystic Fibrosis Foundation

National Heart, Lung, and Blood Institute

Healthline

Children’s Hospital of Pittsburgh

Johns Hopkins

Mount Sinai

Understanding Treatment Options

Cystic Fibrosis Foundation

American Lung Association

Healthline

Stanford

Lung Care With CF (Airway Clearance Techniques)

Huff Coughing

Chest Physical Therapy

Positive Expiratory Pressure

High-Frequency Chest wall Oscillation

Active Cycle of Breathing Technique (ACBT)

Autogenic Drainage

Avaliable Medications

Mucus Thinners

Antibiotics

Nebulizer

CFTR Modulator Therapies

Bronchodilators

Vascular Access Devices

Clinical Trials

Programs and Resources

Compass - Cystic Fibrosis Foundation

CF Roundtable - Resources

CF Research INC - Support Programs

CF Community Blog

CF Wellness Programs

CF Facebook Group

CF Peer Connect

CF Foundation Events

Questions to ask your doctor (From Fellow CF Patient)

Can I be around other people who have CF?

What medications should I take? What are the potential side effects?

Is a lung transplant something to consider for my condition?

What airway clearance techniques should I use?

How should I modify my diet? Do I need to take dietary supplements?

What steps should I take to protect myself from lung infections? How should I treat a lung infection if I get one?

Are there any respiratory or digestive complications I should look out for?

Are there local CF support groups or resources I can access?

DISCLAIMER: Bubl Health website, videos, and other media do not provide medical diagnosis, treatment, or advice. Although we strive to give up-to-date information, no guarantee to accuracy is made. Information contained here may NOT be used as a substitute for the advice of an appropriately—qualified and—licensed physician or other health care provider. The information provided here is for informational purposes only.