Diastrophic Dysplasia - Patient Resource Page

NOTE: The key to health success is working with your team of medical professionals. This page and Bubl Health act as supplements to care from a qualified and licensed physician.

Curated by Sanya Dudeja

Start here - General diastrophic dysplasia Information

Johns Hopkins medicine

medlineplus

nord

children’s hospital of philadelphia

ncbi

Understanding Treatment Options

Nemours-A to Z

nih

medscape

orthopedic institute for children

mu health care

Johns Hopkins medicine

ncbi

nord

Programs and Resources

orphanet

chop

medlineplus

medscape reference

Questions to ask your doctor

What type of mutation causes diastrophic dysplasia?

How is diastrophic dysplasia diagnosed?

What chromosome is diastrophic dysplasia found on?

Can diastrophic dysplasia be cured?

Who does diastrophic dysplasia affect?

How is this diagnosed?

Is there anything I can do to help the effects of this disease?

Who discovered diastrophic dysplasia?

Can I live normally with this disease? 

Is this curable?

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