Fabry Disease - Patient Resource Page

NOTE: The key to health success is working with your team of medical professionals. This page and Bubl Health act as supplements to care from a qualified and licensed physician.

Curated by Sanya Dudeja

Start here - General fabry disease Information

Cleveland Clinic

MedlinePlus

U.S. Department of Health & Human Services

MedicineNet

Understanding Treatment Options

pubmed

nord

U.S. Department of Health & Human Services

Cleveland Clinic

National Fabry Disease Foundation

Programs and Resources

Amicus Therapeutics

The Assistance Fund

NORD

Questions to ask your doctor

Is Fabry disease curable?

Is Fabry disease terminal? 

What is the life expectancy of someone with Fabry disease?

What is the treatment for this disease?

What age is this disease diagnosed? 

What lifestyle changes should I make?

What are my chances of survival?

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