Huntington’s Disease - Patient Resource Page
NOTE: The key to health success is working with your team of medical professionals. This page and Bubl Health act as supplements to care from a qualified and licensed physician.
Curated by Zubin Park
Start here - General Huntington’s Disease Information
Mayo Clinic
Huntington’s Disease Society of America
National Institutes of health
Huntington’s Disease Association
Johns Hopkins
Understanding Treatment Options
Mayo CLinic
Cleveland Clinic
National Institute of Neurological Disorders and Stroke
Stanford
American Society of Gene and Cell Therapy
Northwestern Medicine
Programs and Resources
HDSA National Youth Alliance
Hdsa Support Groups
Inspire
HDA
Huntington’s Disease Facebook Group
HDreach Support Groups
Coping and Support Resourses
Huntington’s Society of Canada: Loss and Grief
HDA: Occupational Therapy
HDSA: Talking Huntington’s With Kids
UCDAVIS: Self Care for Family Caregivers
UCDAVIS: Everyday Living with Huntington’s
UCDAVIS: Communicating with Children about Huntington’s
International Hunington’s Association
HDSA: Long-Term Care
Questions to ask your doctor
How should I go about testing myself for Huntington’s?
What are the options for treating my Huntington's disease with medication or therapy?
What treatment do you think would be best for me?
How will my symptoms change in the future?
What are the benefits and side effects of medications that I'll need to take?
Will my treatment interfere with any drugs that I'm now taking?
Will I need any nutrition treatment or counseling?
Are there support services available to help me through treatment?
What help might be available if I can no longer care for myself at home?
Will treatment control my symptoms?
Are there any clinical trials I should consider?
What are the risks of my passing Huntington's disease to my children?
Should I meet with a genetic counselor before thinking about having a child?
DISCLAIMER: Bubl Health website, videos, and other media do not provide medical diagnosis, treatment, or advice. Although we strive to give up-to-date information, no guarantee to accuracy is made. Information contained here may NOT be used as a substitute for the advice of an appropriately—qualified and—licensed physician or other health care provider. The information provided here is for informational purposes only.