Juvenile Idiopathic Arthritis - Patient Resource Page
NOTE: The key to health success is working with your child’s Pediatric Rheumatologist and Pediatrician. This page and Bubl Health act as supplements to care from a qualified and licensed physician.
Start Here - General JIA Information
Arthritis Foundation
Cincinnati Children’s Hospital
Mayo Clinic
Webmd
Nemours KidsHealth
American College of Rheumatology
Understanding Treatment Options
NOTE: JIA Treatment often includes a combination of medication, physical therapy, and exercise. JIA affects children differently. Work with your Pediatric Rheumatologist and Pediatrician to develop a treatment plan that works for your child.
Af JA Treatment Articles
Mayo Clinic Diagnosis and Treatment
Cincinnati Children’s Hospital
(See “Drug Treatment” tab towards bottom of article for comprehensive breakdown of medical options)
Programs and Resources
Digital Pediatric Rheumatology
AF Virtual JA Conference July 25-26
AF Virtual JA Camps
AF JA Transition resources
Understanding the 504 Plan (Understood.org)
Understanding the 504 Plan (KidsHealth.org)
Connect with fellow JIA Kids and Parents
Live Yes! Arthritis Network
Mothering Juvenile Arthritis - FB Group
Juvenile Arthritis - Kids Get Arthritis Too! - FB Group
Juvenile Idiopathic Arthritis - FB Group
Juvenile Rheumatoid Arthritis Awareness - FB Group
Tiff & Dr. Rosen: Jia Family Support - FB Group
Questions to ask your Pediatric Rheumatologist and Pediatrician (From Fellow JIA Parents)
One of the greatest challenges as a JIA caregiver is the fear of the unknown. It is crucial to work hand in hand with your child’s Pediatric Rheumatologist and Pediatrician. Most importantly, don’t be afraid to just ask. We worked with JIA caregivers to provide a list of questions you can ask your child’s Pediatric Rheumatologist and Pediatrician.
What treatment plan is right for my child?
Will JIA cause permanent joint damage?
Could there be joint complications?
What happens if we don’t proceed with a biologic?
What malignancies are incorporated with a biologic?
Will my child’s body build up a tolerance to their current biologic and need to switch treatments?
Will my child be looking at surgeries down the line for joint damage?
Will my child be viewed differently by peers?
Will my child be able to play sports?
Will my child have any physical restrictions?
Will my child have any dietary restrictions?
Whats the best way to help my child work through flares?
What are some precautions we should take when someone is sick in the house?
Will my child get sicker as a result of having a compromised immune system?
What are the chances that my other children will get the same condition?
Will my child have an increased risk for more autoimmune diseases?
How will JIA impact my child’s development?
Does JIA stunt growth?
What impact will JIA have on puberty?
Will JIA impact my child’s reproductive development?
Could there possibly be fertility concerns in the future?
Will my child be able to function on their own at college or if they go away for school?
What are the chances for remission?
Will my child ever go into remission?
Should we try for remission?
What are the risks involved for taking my child off their meds?
If my child is diagnosed with Polyarticular JIA, can they become systemic?
DISCLAIMER: Bubl Health website, videos, and other media do not provide medical diagnosis, treatment, or advice. Although we strive to give up-to-date information, no guarantee to accuracy is made. Information contained here may NOT be used as a substitute for the advice of an appropriately—qualified and—licensed physician or other health care provider. The information provided here is for informational purposes only.